Gorlin Syndrome Alliance
501C3 Nonprofit Organization Information
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Gorlin Syndrome Alliance
Po Box 4
Reading, PA
19607-0004
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The Mission Of The Bccns Life Support Network Is To:- Focus On The Early Diagnosis And Treatment Of Children Evidencing An Initial Onset Of Bccns;- Develop Information About The Medical Conditions And Disorders Experienced By Those Living With Bccns;- Share This Information With Clinics And Healthcare Providers Treating Bccns Patients, And Other Similarly Affected Populations;- Engage Affected Individuals And Their Families, Caregivers, Colleagues, And Schools In Creative Learning Opportunities To Effect An Optimum Quality Of Life And Attain Maximum Personal Potentials Through Informed Communication;- Strengthen The Capacity Of Patients And Their Families To Manage Their Disease; And- Establish And Foster A Network Of Medical Professionals Actively Engaged In Advancing The Welfare Of The Bccns Community.
34-1915691
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$100,000 + View more asset details with membership or
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$500,000 + View more income details with membership or
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$500,000 + View more revenue details with membership or
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Julie Breneiser
501(C)(3)
Specifically Named Diseases
This organization is an independent organization or an independent auxiliary (i.e., not affiliated with a National, Regional, or Geographic grouping of organizations).
Contributions are deductible
Organization which receives a substantial part of its support from a governmental unit or the general public
12/2022
Download all available information for this organization plus form 990 pdf files to your computer, laptop, and phone.